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Post by Barefoot In Kailua on Nov 22, 2022 21:57:29 GMT -5
She seems to be a beautiful person. I can relate to her and her MS story. I was diagnosed with MS in 2010. I awoke with double vision one morning. It came on that suddenly. I was fine when I went to bed. I looked in the mirror that morning and saw that my left eye was drifting down to the left. It would not follow as I looked up, down, left, right. I also had difficulty swallowing, shock sensations in my arms and legs, and balance issues. These all followed the double vision in short order. The diagnosis feels like a bomb going off in your head. I felt all the emotions of grief, despair, anger, disbelief. I was started on high dose steroids and an MS medication that consisted of 3 shots in my abdomen per week. This initial stage is by far the hardest for a few reasons. First, many people with MS look back and realize they probably had it for several years before diagnosis, and its usually only when a serious side effect arises that they get clarity of their symptoms with a diagnosis. For many, its visual changes that brings them to their doctor. Second, you quickly learn that there are two types of MS. One is very disabling. New symptoms do not resolve and each attack brings new permanent disability. About 15 percent of people with MS have this more severe illness. The other 85 percent have a milder form, in which the symptoms mostly resolve with proper medication/treatment. The problem is, you don't know which camp you fall into in this early stage of the disease. In my case, the symptoms continued to worsen over about a month or six weeks, but then slowly began to subside over the next several months. The "relief" I felt when my symptoms began to subside is indescribable. My initial shock however became fear as a neurologist told me my course with the disease would likely be severe based on the fact that I had so many initial presenting symptoms, so many MS lesions on my brain, and the "lesions" on my brain MRI extended down to the upper spinal cord. He explained that this is often associated with poor outcomes. I literally lived in fear in those early weeks. I remember my Dad having a hard time watching me swallow and choking on my food. It was very hard to see family have to deal with this. I apparently have beat the odds at least so far. My vision is less than optimal when I am tired, but I no longer see double or have a drifting eye. Weakness and motor function is also worse when I am over tired but is mostly good. I have numbness in my feet and numbness and pain on the lateral aspect of my right leg. My legs also experience a sensation of being wet, when they are in fact dry. MS symptoms are so strange that way. It can take on so many weird sensations. But, I walk, I have full use of my arms, I can swallow normally now (mostly). I have fatigue at times but I can deal with that. I still work (yeah). The best piece of advice my neurologist gave me was to live my life normally. Do what ever I want, but know my limits. I do what ever I want (I hiked the Grand Canyon five years ago) and travel frequently. As hard as all of this sounds, I can also HONESTLY say the MS has been a blessing. I am kinder to people and to myself. I don't let the little stuff bother me. I appreciate life more than ever before. I stop to smell the flowers, and to watch a sunset. I have an understanding of mortality, when before I didn't think about it often. I have a relationship with God that is different than before. I feel more spiritually connected to others and the world. There are silver linings to lifes challenges, and we are all here to grow and learn from them, and to see them as blessings in the long run. From what I see on Anna's instagram page, I think she knows this also. Hope you’re doing okay. That was a hard story.
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Post by Deleted on Nov 22, 2022 22:00:50 GMT -5
She seems to be a beautiful person. I can relate to her and her MS story. I was diagnosed with MS in 2010. I awoke with double vision one morning. It came on that suddenly. I was fine when I went to bed. I looked in the mirror that morning and saw that my left eye was drifting down to the left. It would not follow as I looked up, down, left, right. I also had difficulty swallowing, shock sensations in my arms and legs, and balance issues. These all followed the double vision in short order. The diagnosis feels like a bomb going off in your head. I felt all the emotions of grief, despair, anger, disbelief. I was started on high dose steroids and an MS medication that consisted of 3 shots in my abdomen per week. This initial stage is by far the hardest for a few reasons. First, many people with MS look back and realize they probably had it for several years before diagnosis, and its usually only when a serious side effect arises that they get clarity of their symptoms with a diagnosis. For many, its visual changes that brings them to their doctor. Second, you quickly learn that there are two types of MS. One is very disabling. New symptoms do not resolve and each attack brings new permanent disability. About 15 percent of people with MS have this more severe illness. The other 85 percent have a milder form, in which the symptoms mostly resolve with proper medication/treatment. The problem is, you don't know which camp you fall into in this early stage of the disease. In my case, the symptoms continued to worsen over about a month or six weeks, but then slowly began to subside over the next several months. The "relief" I felt when my symptoms began to subside is indescribable. My initial shock however became fear as a neurologist told me my course with the disease would likely be severe based on the fact that I had so many initial presenting symptoms, so many MS lesions on my brain, and the "lesions" on my brain MRI extended down to the upper spinal cord. He explained that this is often associated with poor outcomes. I literally lived in fear in those early weeks. I remember my Dad having a hard time watching me swallow and choking on my food. It was very hard to see family have to deal with this. I apparently have beat the odds at least so far. My vision is less than optimal when I am tired, but I no longer see double or have a drifting eye. Weakness and motor function is also worse when I am over tired but is mostly good. I have numbness in my feet and numbness and pain on the lateral aspect of my right leg. My legs also experience a sensation of being wet, when they are in fact dry. MS symptoms are so strange that way. It can take on so many weird sensations. But, I walk, I have full use of my arms, I can swallow normally now (mostly). I have fatigue at times but I can deal with that. I still work (yeah). The best piece of advice my neurologist gave me was to live my life normally. Do what ever I want, but know my limits. I do what ever I want (I hiked the Grand Canyon five years ago) and travel frequently. As hard as all of this sounds, I can also HONESTLY say the MS has been a blessing. I am kinder to people and to myself. I don't let the little stuff bother me. I appreciate life more than ever before. I stop to smell the flowers, and to watch a sunset. I have an understanding of mortality, when before I didn't think about it often. I have a relationship with God that is different than before. I feel more spiritually connected to others and the world. There are silver linings to lifes challenges, and we are all here to grow and learn from them, and to see them as blessings in the long run. From what I see on Anna's instagram page, I think she knows this also. Thank you for sharing this story. It puts more things into perspective about being thankful for every moment and day. I hope you are well.
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Post by Cubicle No More ... on Nov 22, 2022 23:36:47 GMT -5
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Post by Seahawks 1972 on Nov 23, 2022 1:42:26 GMT -5
It's 1:30am ET and I would like to wish you all the safest Thanksgiving..Ever! Thanks for sharing this space with me and putting up with some of my "off the wall" posts. I hope nothing but good times for all of you. Lastly, a humble thank you to Volleytalk Proboards for having one of the few "Safe Spots" to come to to share our love for volleyball.
Na Wahine Forever!
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Post by 808empath on Nov 23, 2022 2:38:00 GMT -5
She seems to be a beautiful person. I can relate to her and her MS story. I was diagnosed with MS in 2010. I awoke with double vision one morning. It came on that suddenly. I was fine when I went to bed. I looked in the mirror that morning and saw that my left eye was drifting down to the left. It would not follow as I looked up, down, left, right. I also had difficulty swallowing, shock sensations in my arms and legs, and balance issues. These all followed the double vision in short order. The diagnosis feels like a bomb going off in your head. I felt all the emotions of grief, despair, anger, disbelief. I was started on high dose steroids and an MS medication that consisted of 3 shots in my abdomen per week. This initial stage is by far the hardest for a few reasons. First, many people with MS look back and realize they probably had it for several years before diagnosis, and its usually only when a serious side effect arises that they get clarity of their symptoms with a diagnosis. For many, its visual changes that brings them to their doctor. Second, you quickly learn that there are two types of MS. One is very disabling. New symptoms do not resolve and each attack brings new permanent disability. About 15 percent of people with MS have this more severe illness. The other 85 percent have a milder form, in which the symptoms mostly resolve with proper medication/treatment. The problem is, you don't know which camp you fall into in this early stage of the disease. In my case, the symptoms continued to worsen over about a month or six weeks, but then slowly began to subside over the next several months. The "relief" I felt when my symptoms began to subside is indescribable. My initial shock however became fear as a neurologist told me my course with the disease would likely be severe based on the fact that I had so many initial presenting symptoms, so many MS lesions on my brain, and the "lesions" on my brain MRI extended down to the upper spinal cord. He explained that this is often associated with poor outcomes. I literally lived in fear in those early weeks. I remember my Dad having a hard time watching me swallow and choking on my food. It was very hard to see family have to deal with this. I apparently have beat the odds at least so far. My vision is less than optimal when I am tired, but I no longer see double or have a drifting eye. Weakness and motor function is also worse when I am over tired but is mostly good. I have numbness in my feet and numbness and pain on the lateral aspect of my right leg. My legs also experience a sensation of being wet, when they are in fact dry. MS symptoms are so strange that way. It can take on so many weird sensations. But, I walk, I have full use of my arms, I can swallow normally now (mostly). I have fatigue at times but I can deal with that. I still work (yeah). The best piece of advice my neurologist gave me was to live my life normally. Do what ever I want, but know my limits. I do what ever I want (I hiked the Grand Canyon five years ago) and travel frequently. As hard as all of this sounds, I can also HONESTLY say the MS has been a blessing. I am kinder to people and to myself. I don't let the little stuff bother me. I appreciate life more than ever before. I stop to smell the flowers, and to watch a sunset. I have an understanding of mortality, when before I didn't think about it often. I have a relationship with God that is different than before. I feel more spiritually connected to others and the world. There are silver linings to lifes challenges, and we are all here to grow and learn from them, and to see them as blessings in the long run. From what I see on Anna's instagram page, I think she knows this also. Wow. Thank you for sharing. 💕 💕💕
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Post by babybacksets on Nov 23, 2022 2:41:40 GMT -5
Interesting because I feel like going after a Middle Blocker with at least 2 years of eligibility who could potentially compete with Amber is going to be the main recruiting goal for the off season. Westerberg has been solid this season but who is to say she can’t go back to training as a pin and provide depth at both positions as she has in the past? Kennedi will have the off season to get into dominant shape so I hope for the best but you always want to have a backup plan with a middle that’s recovering from injuries. Thankfully Tiff and Amber are INCREDIBLY fit so being the mainstays there all season was doable. But definitely think finding a standout model who is competitive enough to give Amber a break is the most glaring need right now. Tiffany is never going to see the court as a pin ( with who the Wahine have and are bringing in.) “Proving depth” on the outside doesn’t sound like an excited reason to return to the team next year if that was the route. I mean at the end of the day you don’t actually know the future. And we don’t know for sure that Hakas or Adeyemi will be productive starters right off the bat. So if Caylen does stay on the left because that’s our best lineup and having Tiff/Brae as Opps in a 6-2 or otherwise is, then cool. All I’m saying is that it is an option, especially if we can get a middle in that can put up better middle BLOCKING numbers than Tiffany. If she sits or starts at middle or pin is a non factor issue for me personally. I just think we NEED a middle with experience and a decent amount of eligibility to come in with the 2 first year pins. It wouldn’t be a good idea to have Mili and Maddie have to start right away as freshman at the collegiate level. Can’t even think of a time I’ve ever seen 2 freshman middles starting for a top D1 program.
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Post by hwnstunner on Nov 23, 2022 3:30:51 GMT -5
Tiffany is never going to see the court as a pin ( with who the Wahine have and are bringing in.) “Proving depth” on the outside doesn’t sound like an excited reason to return to the team next year if that was the route. I mean at the end of the day you don’t actually know the future. And we don’t know for sure that Hakas or Adeyemi will be productive starters right off the bat. So if Caylen does stay on the left because that’s our best lineup and having Tiff/Brae as Opps in a 6-2 or otherwise is, then cool. All I’m saying is that it is an option, especially if we can get a middle in that can put up better middle BLOCKING numbers than Tiffany. If she sits or starts at middle or pin is a non factor issue for me personally. I just think we NEED a middle with experience and a decent amount of eligibility to come in with the 2 first year pins. It wouldn’t be a good idea to have Mili and Maddie have to start right away as freshman at the collegiate level. Can’t even think of a time I’ve ever seen 2 freshman middles starting for a top D1 program. I agree. A junior transfer middle is probably the coaching staff's top priority. Makes the most sense when it comes to their last scholarship for 2023. Kiraly is a middle after all. Koavball said Hawaii might land another quality walk on. I'd assume its a local player coming home.
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Post by babybacksets on Nov 23, 2022 7:45:16 GMT -5
I mean at the end of the day you don’t actually know the future. And we don’t know for sure that Hakas or Adeyemi will be productive starters right off the bat. So if Caylen does stay on the left because that’s our best lineup and having Tiff/Brae as Opps in a 6-2 or otherwise is, then cool. All I’m saying is that it is an option, especially if we can get a middle in that can put up better middle BLOCKING numbers than Tiffany. If she sits or starts at middle or pin is a non factor issue for me personally. I just think we NEED a middle with experience and a decent amount of eligibility to come in with the 2 first year pins. It wouldn’t be a good idea to have Mili and Maddie have to start right away as freshman at the collegiate level. Can’t even think of a time I’ve ever seen 2 freshman middles starting for a top D1 program. I agree. A junior transfer middle is probably the coaching staff's top priority. Makes the most sense when it comes to their last scholarship for 2023. Kiraly is a middle after all. Koavball said Hawaii might land another quality walk on. I'd assume its a local player coming home. Local walk on player coming home or high school player staying home ? This team will be pretty complete next season depth wise if we can add a middle but the more competitive bodies in the practice gym, the better!
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Post by Barefoot In Kailua on Nov 23, 2022 10:12:41 GMT -5
Tiffany is never going to see the court as a pin ( with who the Wahine have and are bringing in.) “Proving depth” on the outside doesn’t sound like an excited reason to return to the team next year if that was the route. I mean at the end of the day you don’t actually know the future. And we don’t know for sure that Hakas or Adeyemi will be productive starters right off the bat. So if Caylen does stay on the left because that’s our best lineup and having Tiff/Brae as Opps in a 6-2 or otherwise is, then cool. All I’m saying is that it is an option, especially if we can get a middle in that can put up better middle BLOCKING numbers than Tiffany. If she sits or starts at middle or pin is a non factor issue for me personally. I just think we NEED a middle with experience and a decent amount of eligibility to come in with the 2 first year pins. It wouldn’t be a good idea to have Mili and Maddie have to start right away as freshman at the collegiate level. Can’t even think of a time I’ve ever seen 2 freshman middles starting for a top D1 program. But Tiffany is a middle. She was recruited as a middle. That’s her best position. Not saying Robyn won’t recruit a middle or look for one in the portal (because with Anna out, they need another) but I think Tiffany stays in the middle. She’s improved a lot this season playing her natural position.
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Post by wahinefan on Nov 23, 2022 12:05:31 GMT -5
Just wondering, is this supposedly transfer Middle willing to walk-on. Cause right now Robyn does not have a scholarship to give out for next year. Robyn and the Wahine, are at the 12 scholarship limit with the addition of Stella and Tali. FYI, Robyn and the Wahine are playing this current season with only 11 scholarship players. These Wahine players are not on an athletic scholarship: Talia Edmonds, Tayli Ikenaga, Kendra Ham, and Chandler Cowell. As long as Anna wants to be part of the Wahine Team, Robyn will keep her on an Athletic Scholarship. Robyn is not the kind of Head Coach, or person, who will take away an athletic scholarship if that player cannot participate for a medical reason.
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Post by staticb on Nov 23, 2022 12:47:33 GMT -5
If Kiraly can't play, she can be offered a medical retirement, that is she keeps her scholarship and it doesn't count against the school limit. (Would also free her to become a team manager or something)
Plus there is always transfers we don't know about.
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Post by Cubicle No More ... on Nov 23, 2022 17:13:48 GMT -5
Hawaii, Chaminade volleyball players earn academic honorsBy Star-Advertiser Staff 11/23/22 JAMM AQUINO / NOV. 5 Hawaii’s Kendra Ham and Tayli Ikenaga, back, were two of four Rainbow Wahine named to the College Sports Communicators Academic Division I All-District Team.The Hawaii women’s volleyball team had four players named to the College Sports Communicators Academic Division I All-District Team, while Chaminade placed three on the Division II All-District Team. Kendra Ham (human development and family studies), Amber Igiede (psychology), Tayli Ikenaga (elementary education) and Riley Wagoner (chemistry) were honored after attaining at least a 3.50 cumulative GPA and being a starter or important reserve this season. The four UH student-athletes are the most in program history.Chaminade had Alexia Byrnes (Master of Science in counseling psychology), Greta Corti (psychology) and Brooklen Pe‘a (communications) honored. The trio helped the Silverswords advanced to their first NCAA West Regional finals.
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Post by Cubicle No More ... on Nov 23, 2022 17:23:10 GMT -5
Four Rainbow Wahine Earn CSC Volleyball Academic All-District HonorsWomen's Volleyball 11.22.2022 HONOLULU—Four University of Hawai'i women's volleyball players were selected to the College Sports Communicators Academic All-District Team. The four Rainbow Wahine—Kendra Ham, Amber Igiede, Tayli Ikenaga, and Riley Wagoner are now eligible for Academic All-America honors. This year marks the first time that all student-athletes who meet the requirements were named to the all-district team. In order to be eligible, a student-athlete must be a starter or important reserve with at least a 3.50 cumulative GPA (on a 4.0 scale) at his current institution. UH's four honorees are the most in a single-season in program history. KENDRA HAM, Junior, Outside Hitter/Defensive Specialist-Major: Human Development and Family Studies -Academic Honors: Dean's List every semester -Community Service: Last year, worked with P.L.A.Y. (Physical Literacy and Activities for Youth) working motor clinics for children with and without disabilities. Next semester will be working with HUGS Hawai'i (Help, Understanding & Group Support) for internship -Has played in all 26 matches--primarily as a defensive/serving specialist but also seeing spot duty at opposite -She has recorded 204 total digs, averaging 2.24 d/s playing just three rotations in the back row -Has 20 service aces to go with 22 kills and five blocks -Has tallied nine double-digit dig matches, with a career-high 18 coming vs. UC Santa Barbara (110/22/22) AMBER IGIEDE, Junior, Middle Blocker-Major: Psychology -Academic Honors: Earned Big West Scholar-Athlete honors in 2021 -Leads the Big West and is ranked No. 4 in the NCAA with a .433 hitting percentage -Leads league with 3.76 kills/set and with 4.85 points/set -Leads UH with 353 kills, 123 total blocks, 1.31 blocks/set, and 456.0 total points -Has put down double-digit kills in 24 of UH's 26 matches--including a career-high 24 at UC Davis (10/29/22) -Has recorded at least one block in 85 of her 86 career matches TAYLI IKENGAGA, Sophomore, Libero-Major: Elementary Education -Academic Honors: Dean's List, Spring 2022 -Community Service: Helps coach at Core Volleyball for boys and girls from elementary school to high school -UH's starting libero leads Hawai'i with 256 digs and 3.16 digs/set -Has notched 15 matches with 10+ digs--including a season-high 18 vs. Southern California (9/9/22) -Is third on the team with 53 assists fourth with 20 service aces RILEY WAGONER, Junior, Outside Hitter-Major: Chemistry -Academic Honors: Earned Big West Scholar-Athlete honors in 2021 -Has started in all 26 matches at outside hitter -Is second on the team with 309 kills, 3.29 kills/set, 226 digs, and third with 40 total blocks -Pounded a career-high 25 kills against UC San Diego (10/8/22) and hit for a career-high .480 at UCSD (14-2-25) -Has six double-doubles this season while accumulating 17 double-digit kill matches and 12 matches with 10+ digs--including in eight of the last nine matches UH release: hawaiiathletics.com/news/2022/11/22/womens-volleyball-four-rainbow-wahine-earn-csc-volleyball-academic-all-district-honors.aspx
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Post by hwnstunner on Nov 23, 2022 18:15:42 GMT -5
I agree. A junior transfer middle is probably the coaching staff's top priority. Makes the most sense when it comes to their last scholarship for 2023. Kiraly is a middle after all. Koavball said Hawaii might land another quality walk on. I'd assume its a local player coming home. Local walk on player coming home or high school player staying home ? This team will be pretty complete next season depth wise if we can add a middle but the more competitive bodies in the practice gym, the better! No idea. My thought was local player coming home, but what do I know lol. A scholarship middle and a couple quality walk on backcourt players would be a great addition to Adeyemi and Hakas
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Post by babybacksets on Nov 23, 2022 21:24:30 GMT -5
Just wondering, is this supposedly transfer Middle willing to walk-on. Cause right now Robyn does not have a scholarship to give out for next year. Robyn and the Wahine, are at the 12 scholarship limit with the addition of Stella and Tali. FYI, Robyn and the Wahine are playing this current season with only 11 scholarship players. These Wahine players are not on an athletic scholarship: Talia Edmonds, Tayli Ikenaga, Kendra Ham, and Chandler Cowell. As long as Anna wants to be part of the Wahine Team, Robyn will keep her on an Athletic Scholarship. Robyn is not the kind of Head Coach, or person, who will take away an athletic scholarship if that player cannot participate for a medical reason. All of this conversation is contingent on Kiraly not being able to return to the sport. That is the only reason we are having this conversation.
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